Isle of Wight What's On Guide: 2024 Events OnTheWight

Feature Film In Competition – A Life Worth Living – Pushing The Limits of Duchenne

Thursday 15 5.00pmAugust
2013

Film

The Sacred Cinema

Ventnor Youth and Community Centre
Victoria Street
Ventnor

This event has now finished

Feature Film In Competition – A Life Worth Living – Pushing The Limits of Duchenne

Source http://www.isleofwightfilmfestival.co.uk/

Part of Isle of Wight Film Festival 2013

Life worth living

SPONSORED BY ONTHEWIGHT

5 – 7pm

Dir: Annie Perkins. UK. 93 mins Doco.

£5 tickets

Jon Hastie has Duchenne – a severe form of Muscular Dystrophy. Prognosis – paralysis, 24 hour ventilation and an early death. Time is precious.

Time is not for wasting. Jon decides to travel around the UK and Holland visiting a number of amazing Duchenners who have carved out remarkable lives for themselves, despite this most crippling of disabilities.

A Life Worth Living is no ordinary road movie. It’s a fun, inspiring, poignant and surprising rock ‘n roll journey that takes us into the lives of guys who, against all the odds, show us how valuable life is. The film bears witness to the fact that life is to be treasured and lived to the full.